Teratoma Foundation -origins
Teratoma Support Foundation Hi there, in 2000, I had a daughter, Lauren, she is a sacrococcygeal teratoma (SCT) survivor.
At the time, I could not find a single image or story of a survivor of a fetal teratoma on the internet. I thought this meant that none existed! This caused me undue stress so I set up an online support group forum. Established in May 2002, the forum has now grown to over 215 families from around the world with a direct experience with a teratoma, mostly, sacroccygeal but also brain and neck. We are parents, friends and family -some of us have survivors and some of us have tragically lost babies to a teratoma. (We refer to them as 'angels'.)
Renee is a co-moderator and lives in the United States she is the mother of three girls, the youngest of whom, Becky, is now a teenage survivor of an sct. Renee brings to the group a high level of knowledge, experience and compassion. She is also a disability advocate and has relevant professional qualifications to assist the group in this area.
Renee is one of the most intelligent, helpful people I have ever known! Brad and Michelle also are moderators of the web forum and are inspirational in how they have loved and grieved for their lovely little baby angel Molly. You can read about all our stories on this site under their names eg "Molly's Story". Bonnie is also a wonderful moderator to this site.
We hope you enjoy this site and together, we extend a warm welcome to you.
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**disclaimer : we are not medical professionals and cannot give medical advice. We are happy to share our experiences, support and acquired information through having personal experience of a pregnancy with a baby that has/had a sacrococcygeal teratoma.**!
